New Mission: Love For Jenson

by Katie on May 3, 2012 · 1 comment

It’s Thursday, and our weekly mission has been chosen.

Time for us to work our magic and throw some love at someone who least expects it, but most needs it.

This week, we’re going to give some love to Jenson, an adorable 3 year old who is bravely fighting a very rare blood disorder of which he is expected to die from.

We got this nomination from our wonderful team member, Anna. She really does explain this story wonderfully:

Jenson (who is three) has Langerhans Cell Histiocytosis, a rare (1 in 200,000) blood disorder that is treated like cancer.  He started chemo when he was 9 months old, but the LCH continued to progress, attacking his skin, GI tract, bones, liver, and brain.  His older sister Sydney donated her marrow and Jenson underwent a Bone Marrow Transplant on January 31, 2012.  Things were finally looking up and Jenson was able to go home once his engraftment numbers went up!  But then a couple of weeks ago, things started falling apart – Jenson has had multiple brain bleeds and can no longer talk, walk, smile or laugh.  He is terminal.  They don’t know when, but they know it will be soon.  Jenson is now in excruciating pain all of the time.  His parents (Kristen and Doug) are struggling to hold on and treasure their last moments together as a family.

Here’s something Kristen wrote in a recent blog post – “I told him yesterday, “Heaven is a place with no more pain.  Imagine being pain free forever!”‘.  He looked at me and raised his adorable eyebrows.  I looked him in his blue eyes and said, “You deserve to be pain free Jenson.  Mommy will be okay.  I will figure out how to live joyfully like Jenson.”  I have absolutely no idea how I will fulfill that promise.  Right now I have only starting grieving losing the part of our boy that is already gone (his ability to talk, smile, laugh, joke around, and walk), and I am totally devastated.”

So much inspiration going on in this family. From a bone marrow gift from sister, to all of the love from Mom + Dad, to the everyday reminders of joy that Jenson surely gives out. This family just… wow.

So, let do this. Head on over to this post: http://jensonsjourney.blogspot.com/2012/04/jensons-pain-is-intensifying-despite.html and leave a comment for Kristen, Doug, Sydney, and little Jenson.

Bomb’s away!

 

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